What support is available for epilepsy?

What support is available for epilepsy?

Support available from Epilepsy Action includes: a directory of local epilepsy support groups. a free helpline on 0808 800 5050.

What are some of the local state and national organizations that help individuals with epilepsy?

Government Agencies

  • National Institute of Neurological Disorders and Stroke (NINDS)
  • Health Resources and Services Administration (HRSA)
  • EF state affiliates provide services on the local level in many communities.
  • American Epilepsy Society.
  • National Association of Epilepsy Centers (NAEC)
  • Partnership for Drug-Free Kids.

Does everyone with epilepsy have a support plan?

The NICE clinical guideline for epilepsy says that everyone with epilepsy: “should have a comprehensive care plan agreed between the person, family and/or carers where appropriate, and primary and secondary care providers. This should include lifestyle issues as well as medical issues.”

How do you live on your own with epilepsy?

10 Life Hacks For Living With Epilepsy

  1. Be your own epilepsy expert.
  2. Monitor your epilepsy.
  3. Invest in some tech.
  4. Connect with others.
  5. Be active.
  6. Stick to a sleep schedule.
  7. Watch what you drink.
  8. De-stress with aromatherapy.

Does epilepsy qualify as a disability?

Medically Qualifying for Disability Benefits Due to Epilepsy Epilepsy is one of the conditions listed in the Social Security Administration’s Blue Book, which means that if you meet the requirements in the Blue Book listing for epilepsy you may be able to get disability benefits.

What should epileptics avoid?

Seizure triggers

  • Not taking epilepsy medicine as prescribed.
  • Feeling tired and not sleeping well.
  • Stress.
  • Alcohol and recreational drugs.
  • Flashing or flickering lights.
  • Monthly periods.
  • Missing meals.
  • Having an illness which causes a high temperature.

How can I help epilepsy?

How can I take control of my epilepsy?

  1. Take your medicine regularly. It’s important to take your epilepsy medicine regularly, as prescribed by your doctor.
  2. Attend your treatment reviews.
  3. Know your triggers.
  4. Keep a seizure diary.
  5. Read our tips to help with memory problems.
  6. Talk to people.
  7. Look after your emotional wellbeing.

Is the Epilepsy Foundation a nonprofit?

The Epilepsy Foundation, a national non-profit with more than 50 local organizations throughout the United States, has led the fight against seizures since 1968. The Foundation is an unwavering ally for individuals and families impacted by epilepsy and seizures.

What activities should epileptics avoid?

People with uncontrolled seizures should avoid dangerous activities like scuba diving, rock climbing, skydiving, hang gliding, and mountain climbing. These sports require full concentration, and any episode of loss of consciousness may lead to injury and possible death.

Is epilepsy classed as a disability?

What foods should you avoid if you have epilepsy?

If you have a sudden spike or crash in blood sugar, this could cause seizures. This is why it is generally best to avoid high sugar, processed foods such as cookies, cakes, candy and white bread. Ideally you should aim to follow a balanced diet which will release energy into your bloodstream at a slower, steadier rate.

What is the care plan for epilepsy?

The epilepsy action care plan includes space for healthcare professionals and patients to collate information about their condition. You can either use the online electronic version My epilepsy care plan (remember to save it onto your own computer) or download a care plan.

How to help a student with epilepsy?

Most students with epilepsy can participate in all school activities. Start each school year by scheduling a meeting with your child’s teacher. Ask your teacher to discuss epilepsy with the class. Make sure that all adults who supervise your child know seizure response and first aid.

What is the cure for epilepsy?

Epilepsy is usually treated with medicines which try to stop the seizures from happening. Information about epilepsy surgery for adults and children. VNS therapy involves a small electrical device which is implanted under the skin to reduce the number of seizures and make them less severe.

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